We have our report with Delaneys diagnosis. If you would like to know what it says please visit www.carepages.com/carepages/delaneylower
Update on the kids. Char is working super hard creatively and academically. She is almost completely finished with 8th grade. She has done several murals that I'm hoping to post soon. She has started sewing again and is planning some projects with fleece. Julia is also booming creatively and academically. She is getting super close to being done with 3rd grade. She is a whiz at math facts. She has been building with legos again and creating some masterpieces. I will have to take some pictures soon. Delaney has pneumonia and a kidney infection. She is now on oxygen almost full time. However she is working diligently on putting on her own socks. She loves smoothing out her bed blankets and watching movies.
1 comment:
I'm so happy that you finally got a diagnosis. I know this was a LONG time coming. and I know that you mostly knew what it was draining your little girl.
I'm so sorry for the diagnosis in a quality and length of life stand point. I'm so sorry that this perfectly gorgeous little angel has a body that isn't working right. and that you will have to work so much harder to prevent sickness and keep her well.
Prayers and support coming your way.
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