I just wanted to thank all of you that called, checked in, emailed, texted, sent mail and gifts and donated to us while Delaney was in the hospital. It meant more than you will ever know.
We finally got home around 11pm on Saturday night. It was a mess and we were not at our goal to come home but the doctor that came on for the weekend decided to take it upon himself to derail the plan we'd put in place over the whole week. Oh well there's more on that topic on our care page. (www.carepages.com/carepages/delaneylower)
While inpatient we did finally get our acceptance from Dr Shoffner in Atlanta. We have appointments on Tues September 14 for testing and lab work and then at 9am on Wednesday she's going into surgery for a lumbar puncture and muscle biopsy. It's an out patient procedure but we're planning on being there the week. So for now we're trying to get finances together to drive to Atlanta and back and stay there for a week and feed ourselves. My parents have stepped up to take care of the big kids (thanks!!!!!) and we have gotten some donations to help with the trip but we're still trying to get it all together. We have also had to pay several hundred dollars as a deposit on the surgery and the fee to re-read the MRI. It's a lot to deal with in a short time frame!!! The fundraiser we did has been super helpful getting some of the huge deductible down and getting her stroller and car seat and some other equipment we needed for her and we're so grateful for that. Unfortunately the fundraiser money has already gone away!! :( So I'm working my tail off trying to get the money together for this trip. So if you can help out at all we would be eternally grateful. This trip is so important in getting a diagnosis (FINALLY) for our little girl in order to get her the care she needs.
We have been so blessed by so many people who love us. I don't know that I'll ever be able to repay all that has been done for Delaney. It warms my heart every time I see that someone has taken time out of their day to donate or send a card or little gift to her. It makes me realize that we're not fighting this battle alone. You're all out there praying and cheering us on. I love you all for that!!!