Wannabe Earth Mamas: Hospital Stay Day 2

An update since the last post: she had 12 of those jerking movements yesterday and a total of 5 throwing up episodes. Not a good day overall. It made us all very tired. The neurologist Dr Z looked at her tape and her EEG and said that when she's having those jerks it's not showing up as seizure activity so his hypothesis is that since she has hypotonic cerebral palsy it's just the myoclonus caused by that. It's certainly not normal but not unusual for kids with hypotonic CP. Those specific movements aren't classified as seizures but after listening to our accounts of what we've seen over the last couple months she definitely has seizures. Any person who has more than one seizure is said to have epilepsy so I guess we get to add that to our list of diagnosises. SIGH

Today has been better. She seems to be getting used to her little turban and is leaving it alone a lot more. She's also feeling better we think because she's been playing more and just more herself. She hasn't thrown up today but has had several loose stools. That's a lot better for us since it's easier to clean up! I had to go do a load of laundry this morning in the Ronald McDonald Room since she went thru almost every outfit we brought yesterday as well as getting both of her pink blankets dirty and some of Kathy's clothes. Her appetite is still poor but it has been since the bladder infection. Tomorrow is day 10 of the antibiotic so I'd hope she's better by now but it might be upsetting her stomach.

The best news from today is that we are being discharged tomorrow afternoon! Of course this is under the assumption that everything goes perfectly from now until then. Our little girl doesn't have a history of doing what she's supposed to so who knows. I'll feel more confident about it once the papers are in hand!

We had a couple visitors today! My great aunt Mary and cousin Jamie came to see miss Delaney. It was good to see them. It was very nice for them to come visit us here. We'll see them again in June at the family picnic so we'll catch up more then.

Okay now some pics from today.