We went to see Dr. McCartan today. We got in right away and all the staff was super nice. The nurse practitioner came in and went over all of our concerns, did a tone and reflex assessment, and watched her walk up and down the hallway. They found her to be hyptonic, good reflexes, upturn toe on the left, tires easily, wide gait, constant movement to regain balance, and toe gripping while not in braces. After doing the initial assessment the NP went and talked to Dr. McCartan about her findings. Around 15 minutes later they both came back in to talk to us. Dr. McCartan was so so so nice. She talked to us about bracing and asked what we thought about her suresteps. We both said that we thought they were great but didn't provide quite enough support. We discussed three different braces options with the doctor, NP, and orthotist. We eventually agreed on DAFO 3.5 which is an AFO. I talked about not wanting her in a restrictive brace until she's at least 2, so for now we'll go with this brace. In 6 months we will discuss braces again. She went down after the appointment to get casted for her new braces. We also discussed how quickly Delaney tires out during physical activity. They wrote a rx for her to have a reverse walker and then wanted us to have a walker assessment next door at PT during her session.
These people were the greatest people ever. They were so supportive, so amazing. They didn't question diagnoses or symptoms. They just listened and collaborated. It was so amazing.
2 comments:
I'm so glad you finally had an appointment with people who listened, and want to help
Awesome. Good people make all the difference in the world.
She is such a champ. Love the dancing videos.
She is doing so great.
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