I am sorry I haven't posted more pictures. I promise they will come this week it's just been kind of nuts around here (as per the usual). She is doing great with her gt feedings. She's a happy little toddler.
The big girls are in vacation bible school this week.
Thanks to our fundraisers we were able to get Delaney a special stroller that helps support her better.
We are trying to return the kindness by donating left over baked goods to a friend's fundraiser during VBS and making dinner for another friend and writing out thank you notes. We appreciate everyone...everyone...
Oh and I"ve gotten all the girls lesson plans written out from August to Thanksgiving. :) It looks like it's going to be a super fun filled learning school year!
Wednesday, June 30, 2010
Friday, June 25, 2010
G Tube Surgery (Post-Op Shots)
Yesterday we checked into the hospital and had to wait hours before her surgery could begin. They took her back to the OR and we waited. Waiting was the theme of the day. About 30-45 minutes after they took our darling girl to the OR I was paged to a room to receive a call. The call was from an OR nurse letting me know things did not go as planned and that instead of doing it all laproscopically they had to open up her belly. Talk about scaring the crap out of a parent. She couldn't offer any more than that simply and terrifying message. Then we waited. Again. Finally 30 minutes later the doctor came down to speak to us. He explained that the reason he had to open her belly up was because he could not correctly visualize the tube placement once they began blowing up the balloon meant to hold the tube in place. He said he'd never had change up the procedure due to that reason before but he felt more safe just opening her up and inserting a bard button (way more traumatic and painful to change out) temporarily. We were thankful he took the safest route for our baby girl but were still just aching to see her and hold her and KNOW she was okay. An hour later we were paged to be reunited with Delaney. She was sleeping and her discomfort seemed to be very well controlled on pain medication. We waited in an observation room for two hours and then were moved to the floor.
The night was horrible. She was in so much pain and she was letting us know. She cried and screamed and whimpered. She desated and went apeanic and her resps went down to 10 more than once. She was definitely struggling. Finally around 5am they were able to get ahead of her pain and she's been sleeping for 2.5 hours. Bless that child.
The night was horrible. She was in so much pain and she was letting us know. She cried and screamed and whimpered. She desated and went apeanic and her resps went down to 10 more than once. She was definitely struggling. Finally around 5am they were able to get ahead of her pain and she's been sleeping for 2.5 hours. Bless that child.
G Tube Surgery (Pre-Op Shots)
Her surgery was scheduled for 11-1130. I breastfed her at 630 (which I was told was prefectly acceptable). When we checked in they said that after 12 months breastmilk is considered a solid and not a "clear" so surgery would have to wait until at least 1230. It was a LONG morning of waiting.
G Tube Surgery (Before Belly Shots)
Call us crazy just Jess and I sat around and rubbed on her tummy and took pictures of it and kissed it because it will never again be that perfect untouched baby tummy. We mourned her old tummy in a way...her skin that had no scars.
Tuesday, June 22, 2010
Pre-Op Appointment
During the surgery consult they showed us what the Mic-Key button would look like and how it would be put in. They also let Delaney play with a baby Mic-Key button doll. This appointment went really well. We even talked about Delaney's need for oxygen in the car and at night.
The upper gi was completely traumatic. They strapped her to a board. Turned her on her side and tried to get her to drink barium from a bottle. She wouldn't take the bottle because she was livid. They proceeded to take a syringe and squirt it in her mouth. Not only was it nectar thick and room temperate (and we told them five times she required chilled syrup) but they were squirting so much in at a time that she was starting to gurgle and choke. Poor poor baby...
The anes. appointment was very frustrating and annoying. The end result however was the papers were signed, risks were assessed, and we got the tentative go ahead for surgery on Thursday.
The upper gi was completely traumatic. They strapped her to a board. Turned her on her side and tried to get her to drink barium from a bottle. She wouldn't take the bottle because she was livid. They proceeded to take a syringe and squirt it in her mouth. Not only was it nectar thick and room temperate (and we told them five times she required chilled syrup) but they were squirting so much in at a time that she was starting to gurgle and choke. Poor poor baby...
The anes. appointment was very frustrating and annoying. The end result however was the papers were signed, risks were assessed, and we got the tentative go ahead for surgery on Thursday.
We love our friends
M, P, and T (and soon to be H) watched Charlotte and Julia while we were at the hospital with Delaney. We are so thankful to have friends that can step in and watch the big girls or bring us food to the hospital or bring us dinner at home or stalking the blog to find out what's going on. M took all the girls to chuck e cheese, they watched a movie and colored, they enjoyed ice cream and dress up. I'm pretty sure they had a great time!
Monday, June 21, 2010
Jess
Jess turned another year older this weekend...here are a few of the reasons I'm really glad she was born so she could be in my life.
1. I love her dearly
2. She's a great mom
3. She literally saves lives on a daily basis...the smallest of lives
4. She makes some really good enchiladas
5. She is hilarious and understand why I don't always get humor
6. She is patient and kind and allows for my quirks
7. She loves to travel
8. She isn't afraid to be part of the good, bad, and ugly of life
9. She loves music
10. She has a beautiful singing voice
11. She's been pregnant, given birth, and breastfed before...so she gets it
12. She's older than me :)
13. She feels the calling to dance in our living room, at the table, in the car, through the kitchen, and even in the yard sometimes...
14. She's absolutely perfect for me
15. Even if she doesn't want to...she listens...and listens well
16. She makes some darn good french toast
17. She exposes me to "culture" through plays, indie movies, and "weird" music
18. She cares about my best friend and her daughter as much as I do
19. She constantly emails/texts/calls to find out every detail of the day/appointment/event if she's at work and has to miss it
20. She cries...in front of me
21. She likes to take naps
22. She's super serious and hard nosed when it counts
23. She makes a really good version of lasagna
24. She enjoys my cooking
25. She loves diet coke
26. She giggles when I kiss her
27. We have inside jokes that come from countless hours of hysterically laughing
28. She devotes her entire self to others... some times to a fault
29. She is passionate about acceptance
30. She raises our kids with passion, appreciation, acceptance, and love.
31. She likes a lot of the same shows on tv that I like
32. She has taught our one year old to pucker up for chapstick
33. She loves me just the way I need to be loved...
34. She just rocks!
1. I love her dearly
2. She's a great mom
3. She literally saves lives on a daily basis...the smallest of lives
4. She makes some really good enchiladas
5. She is hilarious and understand why I don't always get humor
6. She is patient and kind and allows for my quirks
7. She loves to travel
8. She isn't afraid to be part of the good, bad, and ugly of life
9. She loves music
10. She has a beautiful singing voice
11. She's been pregnant, given birth, and breastfed before...so she gets it
12. She's older than me :)
13. She feels the calling to dance in our living room, at the table, in the car, through the kitchen, and even in the yard sometimes...
14. She's absolutely perfect for me
15. Even if she doesn't want to...she listens...and listens well
16. She makes some darn good french toast
17. She exposes me to "culture" through plays, indie movies, and "weird" music
18. She cares about my best friend and her daughter as much as I do
19. She constantly emails/texts/calls to find out every detail of the day/appointment/event if she's at work and has to miss it
20. She cries...in front of me
21. She likes to take naps
22. She's super serious and hard nosed when it counts
23. She makes a really good version of lasagna
24. She enjoys my cooking
25. She loves diet coke
26. She giggles when I kiss her
27. We have inside jokes that come from countless hours of hysterically laughing
28. She devotes her entire self to others... some times to a fault
29. She is passionate about acceptance
30. She raises our kids with passion, appreciation, acceptance, and love.
31. She likes a lot of the same shows on tv that I like
32. She has taught our one year old to pucker up for chapstick
33. She loves me just the way I need to be loved...
34. She just rocks!
Readers and Lurkers
Okay it's that time when I find out who is reading...all you have to respond with is "me" but I'd like to know how many people are reading my blog and how many of you I "know". I post some really sensitive information on here and would like to know who all is out there...
Sooooo come out come out where ever you are!
Sooooo come out come out where ever you are!
Sunday, June 20, 2010
Afternoon the Gma and Papa
Talking to Grandma
Stealing Papa's chair
Papa trying to get his seat back
Sharing the seat
D sitting in the rocking chair Jess got on her 2nd birthday
Friday, June 18, 2010
Swallow Study
Didn't turn out well....
More life changing news...
But we are a strong family...she is a strong girl. We will get through.
More life changing news...
But we are a strong family...she is a strong girl. We will get through.
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