Donate

You can donate to Delaney's medical expenses thru Paypal!

Friday, September 24, 2010

From moment to moment things change. For a few minutes/hours/a whole day our kids are hardly different from their peers. But then in a split second, for no outside reason, they come crashing down. We, as parents, mourn those times. We grieve. We are overcome with fear that THIS crash could be the one our child never bounces back from. Our kids are real, they cry and they laugh. And souls like theirs are so very rare. As parents, we are afraid and we are hopeful. - God never promised it would be easy. He just promised you would never do it alone.

I wrote that in an email to a couple of Mito moms yesterday. One of the moms reposted it on her facebook page. I didn't realize at the time that my words would hit her like they did. I was really just trying to let her know even though we don't have a final diagnosis for Delaney that we understand fully what she's going through. I was trying to share with her that Mattie Stepanek author of Heartsongs and a "Mito Warrior" and his mom Jenni Stepanek author of Messenger and a "Mito Warrior" were inspirational for us right now.

This week is coming to a close. Many of you have done research on Mito this week. Some have donated to United Mitochondrial Disease Foundation in honor of Delaney. Some have donated to Delaney's medical expenses. Some have prayed. Some have given thought about her this week. Some have simply taken the time to read my blog posts, no matter how scattered. Some have signed up to read our carepage. Thank you. There are no words to tell you what it feels like to have ANY of these things done for Delaney. It makes us feel a lot less alone. It takes a village to raise a child. Well I"m pretty sure it takes a whole country to raise a special needs one. So thank you for being our country.

Julia provides comic relief. She PLAYS with Delaney. She talks to her. She protects her. She adores her. And Delaney pretty much adores Julia. Smiles huge when she enters a room. Laughs at all her jokes. Cuddles with her. Julia is a great big sister.



Charlotte is our protector. She's the hands on sister. She is constantly asking to help with diapers, clothing changes, medicines, feeds, etc. She soothes Delaney. She teaches her. She includes her. She is definitely a biggest sister. And Delaney's day isn't complete without her Charlotte. One of D's sometimes words is CharChar. She will search Char out in the house. She will have "conversations" with Char. She loves her so very much.



With her sisters at her side she can traverse any obstacle. They can usually be seen flanking her. Surrounding her. Without any prompting they protect her and join together to make her laugh. And I must say Delaney makes them laugh too. God chose these girls specifically to be her sisters and I am so very proud and honored to be their parent.




We sure have fun in this house. Pig tails all around. Delaney got them, then Charlotte put them in, then Julia requested them. That's usually how it goes here. Char starts dancing, then Julia starts dancing, then Delaney starts dancing. Or whatever the activity may be its usually done as a group.



This is an older picture too but boy does it show them in their true style. Even though some days pretty much suck raising three girls (hormones, emotions, etc) days like this one are so very worth the rough days.

No comments: